Understand what you are dealing with

Not on the list?

Rare and uncommon cancers

Rare disease is where a written guide helps least and an expert panel helps most. Uncommon histologies and cancers of unknown primary go to the Complex & Rare Case Board, with invited sub-specialists and a trial and expanded-access search as part of the workup.

For families

If someone you love has just been diagnosed

• You do not have to decide anything this week. Almost nothing in cancer is decided in a day.
• Collect the paperwork. The biopsy report matters more than any scan.
• Go to appointments in pairs. A frightened person does not hear everything.
• Ask what the whole course costs before it starts, not after.
• Asking for a second opinion is normal medicine, not an insult to anyone.